Being diagnoses with a serious illness is alarming. Many question go through your mind. Is it curable? Am I going to die? What do I do now? These are the questions I had. My trust in God was still there, but I had questions and my desire was to be well. Common illnesses where treatment is widely available are common. Being diagnoses with a rare disease is different. Doctors may have never heard of it. You may be misdiagnoses. Knowing how, where and what may entail during a rare illness is what this book is about. Based on my own experience, this book shares the ups and downs, emotional roller coaster and effort by family and friends to get through a critical illness.